Public & Nonprofit
This page connects you to a broad range of trusted organizations and official resources dedicated to
supporting the rare disease community. Here, you’ll find links to nonprofit foundations, advocacy groups,
government agencies, and research initiatives—all committed to improving the lives of patients, families,
and advocates affected by rare diseases.
These resources represent the public and nonprofit sectors and are provided to help you access
reliable information, find support, and connect with communities making a difference in rare disease advocacy and research.
Disclaimer: These links are provided for informational purposes only. Always consult with a healthcare
professional before making any decisions about your health.
Search for an Organization:
| Organization Name | Description | Category |
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