CT Rare Advocate

You may be rare, but you are not alone!

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Contact Us

Have a question, suggestion, or want to share your rare disease story? We'd love to hear from you!

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Send us an email directly at: advocate@rarectadvocate.com

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Follow us on Bluesky: @rarectadvocate.com

See the daily Rare Disease of the Day for information about rare diseases.

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Follow us on Instagram: @rarectadvocate

See our daily rare disease awareness posts and stories.

💬 What We'd Love to Hear

  • Questions about rare diseases
  • Suggestions for new content
  • Your rare disease story
  • Feedback about the website
  • Partnership opportunities